Your definitive diagnosis has changed my life!
I wanted to write to you to say a huge THANK YOU.
I had been suffering with neck problems for over 3 years, saw numerous doctors and had various experimental treatments as they all had no idea what the problem was. The last doctor I saw even suggested it was all in my head and that I should see a therapist!
I decided to take matters into my own hands and scoured the register for doctors dealing with neck injuries. You popped up amongst others but I liked your face (if the truth be told). You looked honest and trustworthy so I decided I had nothing to lose. And thank goodness for that because as soon as you saw me you suggested I could have Dystonia.
Well, I have indeed been diagnosed with Dystonia and am now having treatment at Queen’s Hospital in Romford. The treatment is going well and my pain is being managed.
I can’t begin to tell you how much this is changing my life. I still have severely limited movement in my neck and pain but it is so much better than it was and I am responded to treatment well. Even small things like putting make up on and drying my hair are manageable, the kind of things I took for granted. I can turn slightly when crossing the road which was impossible 3 months ago. People use to stare at me because I would stand there and swivel at a crossing because I could not see oncoming traffic. And I am hoping that with each treatment, my mobility and pain will improve.
So, once again Dr Huntley THANK YOU, THANK YOU, THANK YOU for helping me look forward to the future and to enjoying my life again.
2 August 2019